GCRI · Masyarakat dan Pembangunan Manusia
Etika riset inklusif
Research with people, especially those affected by crises, poverty or discrimination, raises questions of consent, harm, power and benefit. Inclusive research ethics asks that participants be respected and protected, that communities share in shaping and benefiting from research, and that data be governed responsibly. This page sets out the principles and practices involved, how they are assessed, and what evidence serves researchers, ethics committees and funders.
Inclusive research ethics on the record.
Inclusive research ethics: how the risk develops.
Participation, consent and local knowledge. The dossier below sets out how the risk develops, what is measured, where the data come from, how it is modelled and who decides.
Consent must be informed and free
Participants need to understand what research involves and be free to refuse. Crises, dependence on aid and power differences can undermine free consent.
Harms can follow research
Data can be used to identify, stigmatise or target people. Protecting confidentiality and minimising data collection reduce these risks.
Communities should shape research
Research designed with communities is more relevant and more likely to benefit them, and helps correct imbalances between researchers and participants.
Benefits should be shared
Results, data and capacity should return to the communities and countries where research takes place.
How inclusive research ethics is modelled, measured and tested.
Model, asumsi, data, dan ketidakpastiannya, dalam bentuk yang akan diperiksa ilmuwan atau insinyur. Strukturnya mengikuti metode yang dipublikasikan. Nilai yang digambar bersifat ilustratif, bukan temuan.
Model sistem
The couplings between the systems in inclusive research ethics: signs of influence, a reinforcing and a balancing loop, and cross-links where stress jumps.
Ethics govern research with people in every domain.
- KesehatanKeterkaitanHealth research with people requires ethics review and consent.What to watchEthics approvals
- Keanekaragaman hayatiKeterkaitanIndigenous knowledge requires free, prior and informed consent.What to watchConsent records
- PanganKeterkaitanSurveys of food insecurity must protect respondents.What to watchPerlindungan data
Practice is designed for the seri Metode dan Teknis. The Belmont Report (1979), the Declaration of Helsinki (revised 2024) and the CARE Principles (2020) set the ethics.
- Ethics review lessons.
- Community research agreements.
Apa yang diukur, dan seberapa baik.
Setiap indikator membawa satuan, frekuensi, jenis sumber di baliknya, dan label bukti yang akan dibawa suatu nilai. Tidak ada nilai yang ditampilkan: sebuah program menyediakannya berdasarkan wewenangnya sendiri.
| Indikator | Unit | Kadensi | Jenis sumber | Label |
|---|---|---|---|---|
| Studies with ethics review | percent of published studies reporting approval | per tinjauan | Publication audits | TERAMATI |
| Research with community engagement documented | percent of projects | per tinjauan | Project records | DINYATAKAN |
| Local researchers in authorship | share of authors from study countries | per tinjauan | Bibliometric analysis | TERAMATI |
| Data management plans with protection measures | percent of funded projects | per tinjauan | Funder records | DINYATAKAN |
| Results returned to participants or communities | percent of projects | per tinjauan | Project records | DINYATAKAN |
| Ethics committees with capacity for social research | jumlah | per penilaian | Institutional records | DILAPORKAN |
Asal bukti.
Set data publik bernama dan catatan kelembagaan, masing-masing dengan kelas lisensinya. Sumber berdasarkan perjanjian hanya digunakan sesuai ketentuannya dan tidak pernah diterbitkan ulang.
| Sumber | Apa yang diberikannya | Kelas lisensi |
|---|---|---|
| CIOMS International Ethical Guidelines for Health-related Research Involving Humans | Ethical guidance for research in diverse settings | Public, CIOMS terms |
| Global Code of Conduct for Research in Resource-Poor Settings | Principles of fairness, respect, care and honesty | Public, terms to check |
| Rekomendasi UNESCO tentang Sains Terbuka | Principles on inclusion and equity in science | Public, UNESCO terms |
| Prinsip CARE untuk Tata Kelola Data Adat | Collective rights in data | Public, GIDA terms |
| Bibliometric databases such as OpenAlex | Authorship and collaboration patterns | Terbuka, CC0 |
Siapa yang memutuskan, dan apa yang dilayani bukti.
Society and Human Development prepares evidence. The decisions below are taken by the authorities named, under their own rules, and never by the platform.
| Siapa yang memutuskan | Pertanyaannya | Bukti yang dilayani halaman ini |
|---|---|---|
| Ethics committees | Whether research is ethical and how to monitor it | Checklists; protection plans |
| Researchers and research teams | How to design inclusive and protective research | Engagement and benefit-sharing guides |
| Funders | What ethics and equity conditions to set | Audit evidence |
Keluaran yang dihasilkan topik ini
- Ethics review checklists for research in crises
- Community engagement and benefit-sharing guides
- Data protection plans for research with vulnerable groups
- Audits of authorship and benefit sharing
Pertanyaan yang diajukan para pakar.
- Who defines the research question, and do affected people have a voice in it?
- Is consent truly informed and voluntary, especially in crises and unequal relationships?
- How is local and Indigenous knowledge recognised, credited and protected?
- What data are collected, who controls them and how could they cause harm?
- What do participants and communities receive from the research?
Principles in practice.
Ethical research begins with respect for persons, beneficence and justice, principles long established in research ethics, applied with care to settings of crisis and inequality. Consent must be informed, voluntary and ongoing, which is difficult when people depend on assistance or fear consequences. Research should minimise burden, avoid repeated assessment of the same communities and stop when risks outweigh benefits.
Participation ranges from consultation to co-design and community-led research. Indigenous data sovereignty principles assert the rights of Indigenous peoples to govern data about them. Local knowledge of hazards, ecosystems and coping often precedes and complements scientific data, and should be credited and used only with permission. Data protection, including minimisation, anonymisation and secure storage, protects participants from identification and misuse.
Crisis settings add specific duties. Researchers must avoid diverting resources from response, coordinate to prevent over-assessment, protect staff and participants, and recognise that people in distress may agree to take part because they hope for assistance. Clear explanation that research is separate from aid is part of valid consent.
Methods and safeguards.
Ethical review
Independent review of protocols before research starts, with attention to risk and consent.
Co-design
Communities shape questions, methods and interpretation.
Protection by design
Collect only what is needed, protect identities and agree retention and use.
Limits: ethical review cannot anticipate every situation, power imbalances persist even with good procedures, and anonymisation can fail when small groups or locations are described.
Cara hal ini dikaji, dan apa yang tidak dapat dinyatakan metodenya.
- 01Ilmu sosial dan perilakuDesain survei untuk kelompok yang sulit dijangkau · Riset kualitatif dan partisipatifDiterapkan di sini
- 02Inferensi kausal dan evaluasi dampakEvaluasi transfer tunai · Dampak bencana terhadap rumah tangga · Evaluasi program pendidikanDiterapkan di sini
- 03Statistik spasial dan geostatistikEstimasi kemiskinan area kecil · Lapisan kerentanan dan bahayaDiterapkan di sini
Where this page’s references lead.
Badan dan dokumen yang menjadi acuan halaman ini. Status dan edisi berubah; setiap tautan menuju badan penerbitnya.
Tanya jawab.
What is informed consent?
What is benefit sharing in research?
Why is research in crises ethically sensitive?
Can participants withdraw?
Who owns community knowledge?
How do I report an ethical concern?
Kontribusikan bukti dari halaman ini.
Laporan is the Consortium’s quarterly publication. What you know about this subject can become evidence, a case or a correction in the next edition, credited to you and published under CC BY 4.0 where it is your own work.
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Bawa metode, dataset, atau pertanyaan.
Informasi dan pertanyaan sudah terbuka hari ini. Sebuah pertanyaan menerima nomor referensi dan menyebutkan langkah berikutnya; lamaran, pembayaran, alokasi komputasi, dan pendaftaran hanya dibuka ketika tim, ketentuan, dan kapasitas tinjauannya tersedia.
Dokumen hukum.
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