GCRI · 사회와 인간 개발
포용적 연구 윤리
Research with people, especially those affected by crises, poverty or discrimination, raises questions of consent, harm, power and benefit. Inclusive research ethics asks that participants be respected and protected, that communities share in shaping and benefiting from research, and that data be governed responsibly. This page sets out the principles and practices involved, how they are assessed, and what evidence serves researchers, ethics committees and funders.
Inclusive research ethics on the record.
Inclusive research ethics: how the risk develops.
Participation, consent and local knowledge. The dossier below sets out how the risk develops, what is measured, where the data come from, how it is modelled and who decides.
Consent must be informed and free
Participants need to understand what research involves and be free to refuse. Crises, dependence on aid and power differences can undermine free consent.
Harms can follow research
Data can be used to identify, stigmatise or target people. Protecting confidentiality and minimising data collection reduce these risks.
Communities should shape research
Research designed with communities is more relevant and more likely to benefit them, and helps correct imbalances between researchers and participants.
Benefits should be shared
Results, data and capacity should return to the communities and countries where research takes place.
How inclusive research ethics is modelled, measured and tested.
모형, 그 가정, 데이터, 불확실성을 과학자나 엔지니어가 확인할 형태로 제시합니다. 구조는 발행된 방법을 따릅니다. 제시된 값은 예시이며 결과가 아닙니다.
시스템 모형
The couplings between the systems in inclusive research ethics: signs of influence, a reinforcing and a balancing loop, and cross-links where stress jumps.
Ethics govern research with people in every domain.
Practice is designed for the 방법 및 기술 시리즈. The Belmont Report (1979), the Declaration of Helsinki (revised 2024) and the CARE Principles (2020) set the ethics.
- Ethics review lessons.
- Community research agreements.
측정되는 것과 그 정확도.
각 지표에는 단위, 주기, 그 뒤의 출처 종류, 값에 붙을 근거 표시가 있습니다. 값은 표시하지 않습니다. 값은 프로그램이 자체 권한으로 제공합니다.
| 지표 | 단위 | 주기 | 출처 유형 | 라벨 |
|---|---|---|---|---|
| Studies with ethics review | percent of published studies reporting approval | 검토별 | Publication audits | 관측 |
| Research with community engagement documented | percent of projects | 검토별 | Project records | 신고됨 |
| Local researchers in authorship | share of authors from study countries | 검토별 | Bibliometric analysis | 관측 |
| Data management plans with protection measures | percent of funded projects | 검토별 | Funder records | 신고됨 |
| Results returned to participants or communities | percent of projects | 검토별 | Project records | 신고됨 |
| Ethics committees with capacity for social research | 건수 | 평가별 | Institutional records | 보고됨 |
근거의 출처.
이름이 명시된 공개 데이터셋과 기관 기록으로, 각각 라이선스 등급이 있습니다. 협약에 따른 출처는 그 조건에 따라서만 사용하며 결코 재게시하지 않습니다.
| 출처 | 제공하는 것 | 라이선스 등급 |
|---|---|---|
| CIOMS International Ethical Guidelines for Health-related Research Involving Humans | Ethical guidance for research in diverse settings | Public, CIOMS terms |
| Global Code of Conduct for Research in Resource-Poor Settings | Principles of fairness, respect, care and honesty | Public, terms to check |
| UNESCO 개방형 과학 권고 | Principles on inclusion and equity in science | Public, UNESCO terms |
| 원주민 데이터 거버넌스를 위한 CARE 원칙 | Collective rights in data | Public, GIDA terms |
| Bibliometric databases such as OpenAlex | Authorship and collaboration patterns | 공개, CC0 |
누가 결정하며 근거는 무엇에 쓰이는지.
Society and Human Development prepares evidence. The decisions below are taken by the authorities named, under their own rules, and never by the platform.
| 결정 주체 | 질문 | 이 페이지가 제공하는 근거 |
|---|---|---|
| Ethics committees | Whether research is ethical and how to monitor it | Checklists; protection plans |
| Researchers and research teams | How to design inclusive and protective research | Engagement and benefit-sharing guides |
| Funders | What ethics and equity conditions to set | Audit evidence |
이 주제가 생산하는 산출물
- Ethics review checklists for research in crises
- Community engagement and benefit-sharing guides
- Data protection plans for research with vulnerable groups
- Audits of authorship and benefit sharing
전문가가 묻는 질문.
- Who defines the research question, and do affected people have a voice in it?
- Is consent truly informed and voluntary, especially in crises and unequal relationships?
- How is local and Indigenous knowledge recognised, credited and protected?
- What data are collected, who controls them and how could they cause harm?
- What do participants and communities receive from the research?
Principles in practice.
Ethical research begins with respect for persons, beneficence and justice, principles long established in research ethics, applied with care to settings of crisis and inequality. Consent must be informed, voluntary and ongoing, which is difficult when people depend on assistance or fear consequences. Research should minimise burden, avoid repeated assessment of the same communities and stop when risks outweigh benefits.
Participation ranges from consultation to co-design and community-led research. Indigenous data sovereignty principles assert the rights of Indigenous peoples to govern data about them. Local knowledge of hazards, ecosystems and coping often precedes and complements scientific data, and should be credited and used only with permission. Data protection, including minimisation, anonymisation and secure storage, protects participants from identification and misuse.
Crisis settings add specific duties. Researchers must avoid diverting resources from response, coordinate to prevent over-assessment, protect staff and participants, and recognise that people in distress may agree to take part because they hope for assistance. Clear explanation that research is separate from aid is part of valid consent.
Methods and safeguards.
Ethical review
Independent review of protocols before research starts, with attention to risk and consent.
Co-design
Communities shape questions, methods and interpretation.
Protection by design
Collect only what is needed, protect identities and agree retention and use.
Limits: ethical review cannot anticipate every situation, power imbalances persist even with good procedures, and anonymisation can fail when small groups or locations are described.
Where this page’s references lead.
이 페이지를 읽을 때 기준이 되는 기구와 문서. 상태와 판은 바뀌며, 각 링크는 발행 기구로 연결됩니다.
질문과 답변.
What is informed consent?
What is benefit sharing in research?
Why is research in crises ethically sensitive?
Can participants withdraw?
Who owns community knowledge?
How do I report an ethical concern?
이 페이지에서 증거를 기여하십시오.
보고서 is the Consortium’s quarterly publication. What you know about this subject can become evidence, a case or a correction in the next edition, credited to you and published under CC BY 4.0 where it is your own work.
- 이메일게이트웨이 GW-GCRI이 페이지에서 보내기증거, 정정, 사례, 방법, 검토, 번역 또는 프로필 입력 자료. 이 페이지의 태그가 붙어 도착하므로, 이를 담당하는 편집자가 받게 됩니다.
- Zenodo개방형 예치기탁하고 커뮤니티에 제출하기ORCID iD로 Zenodo에 직접 기록을 게시한 뒤, 그곳의 Reports 커뮤니티에 제출하십시오. 큐레이터가 검토하며, DOI는 귀하의 것으로 남습니다.
- 보고서GCRI모든 기여 방법 보기기여 유형, 각각의 검토 방식, 받게 되는 크레디트, 라이선스, 그리고 절대 받지 않는 것.
개인정보, 민감한 인프라 세부 정보, 공유할 권리가 없는 자료는 절대 보내지 마십시오. 기여물은 사용 전에 검토됩니다. 기여물을 보낸다고 해서 저작자 지위나 편집 권한이 부여되지 않으며, 후원으로 조사 결과를 얻을 수 없습니다.
방법, 데이터세트 또는 질문을 가져오십시오.
정보와 문의는 오늘부터 열려 있습니다. 문의에는 참조 번호가 부여되고 다음 단계가 안내됩니다. 신청, 결제, 컴퓨팅 할당, 등록은 해당 팀, 약관, 심사 역량이 갖추어졌을 때만 열립니다.
법률 문서.
이 사이트의 지도, 데이터와 그림은 맥락과 일반 정보로 제시됩니다. 조언, 예보 또는 경보가 아니며, 정보의 한계는 면책 고지와 데이터 고지에 나와 있습니다.